Objective:

To determine what biopharmaceutical and diagnostic/device companies are doing in the area of Patient Engagement (PE), in terms of strategy, roles and responsibilities, initiatives, measurements, and future plans.

Benefits:

• Intelligence and insights for developing patient engagement capabilities
• Guidance for growing your existing patient experience group
• Defining scope and resources required to meet patient experience objectives
• Justification for current investment in patient experience
• Critical information for building or refining a patient experience value model

Method:

To conduct an electronic survey with Marketing and Medical Affairs within biopharmaceutical and diagnostic/device companies, with follow-up selected telephone interviews with survey responders. The survey will target 15-20 companies in biopharmaceutical, and 10-15 companies in diagnostic and medical device companies. The interviews will target 6-7 thirty-minute telephone interviews for each sector. All survey and interview results will be blinded and aggregated and made available to all responders.

Sponsors:

We will seek sponsors in each sector to fund the study. Sponsors will be permitted to add a limited number of specific questions to the survey and interview guide. The cost for each sponsor will be $25,000.

Timing:

The electronic survey will take 6 weeks to complete, from question development to final report. And the telephone interviews will take an additional 4 weeks to complete.

Deliverables:

The deliverables will include a “key highlights” report for participants, and a detailed report with recommendations for the project sponsors. The final reports will be in a PowerPoint format with remote meetings to deliver the results.

 Sample Questions:

• Do you have a formal strategy for patient engagement (PE)?
• Is there a formal structure within your organization to manage PE?
• Which other areas of your organization are involved in PE?
• Describe the roles and responsibilities of people working on PE.
• Do you see a change in PE in the future in your organization with regards to headcount, budget, responsibilities, etc.
• Is there any training programs for people working in the PE area?
• What methods and tools do you use to capture data on PE?
• What outcomes do you measure in the PE area?
• How is patient information used to develop PE initiatives?
• What do you see as the changing role of patients in the future?
• What do you see as the commitment to PE in the future in your organization?